(2012) Documentary (Spicer and Moore) Tom Spicer, Kate Spicer, Will Spicer, Lars Ulrich, Dr. Randi Hagerman, Jasmin St. Clair, Kerry King, James Hetfield, Janet (caregiver), Mum, Dad and Stepmum, Steve and Brian. Directed by James Moore and William Spicer
We all have dreams, no matter who we are. Even those of us who may suffer from intellectual disabilities have them. They can be great or small and some may even seem to be on the surface unattainable. There are occasions however when with the help of those who love us and care for us the most, anything can be possible – even achieving the unattainable.
Tom Spicer suffers from Fragile X Syndrome which is also known as Martin-Bell Syndrome. It’s not a form of autism, but autism can go hand in hand with it and often some of the symptoms of the disorder may well appear to be autism; in fact, Tom’s sister describes Fragile X during the film as “autism with bells on.” Tom lives in a care facility in England; he’s 40 years old and works at converting old newspapers into bedding for dogs which is a bit more complicated than you’d imagine. His mom and dad still have contact with him, but he seems to respond to his stepmom more than anyone.
His older sister Kate, a journalist and younger brother Will, a filmmaker have essentially ignored him most of their adult lives; they still see him from time to time but Tom can be difficult. One of the by-products of Fragile-X is enhanced anxiety which can cause him to shut down. He has a hard time dealing with things outside the norm and sometimes it can require a great deal of patience to spend any time with him.
Tom’s dream is to meet Lars Ulrich, the drummer for Metallica. He shares that dream with plenty of people, but for Tom, music is something of a refuge; he turns to it when his anxiety becomes intolerable. Kate and Will decide that they should make this happen but they will have to journey to America in order to do it as Metallica was on tour of the United States at the time this was made. Kate has some contacts that might be of use and as a journalist she has no problem picking up a phone and talking to people who are used to saying “no.” Will and his production partner Moore document the journey.
First off, getting Tom on the plane is no easy matter. This is far, far, far out of his comfort zone and his first instinct is to go to the paper shed where he feels useful and can shut out the anxiety. The trip is almost over before it starts.
However, it is not much of a spoiler to say that eventually they get Tom on that plane and take him to Los Angeles where they rent an RV (or caravan for those in Britain who may be reading this) and off they go to Las Vegas, Sacramento and Anaheim, following the tour.
Tom’s anxieties continue to be a factor; loud noises are difficult for him, much more so than the rest of us when loud volumes which may be relatively comfortable for us can seem to a Fragile X sufferer to be ten to a hundred times louder than how the rest of us experience it; when noise is truly uncomfortable it can be excruciating to someone with Fragile X.
Moore and Will Spicer capture some beautiful images of the English countryside as well as of the American West, particularly Yosemite National Park where the Spicers make a brief stop on their way to Sacramento. There are times where you can’t help but admire the images on the screen.
What sets this film apart is the human element. Kate is a bit of a worrier and throughout the movie she tends to hide behind some fairly unattractive hats. She is the one who makes the connections with Metallica’s management who turn out to be extremely accommodating. Will is less of a presence here; he’s mostly behind the camera but he seems to have quite the can-do attitude.
We do hear from an expert on Fragile X who explains the disorder somewhat but quite frankly we really only get the basics. Those who are interested should Google it as there is plenty of information about it on the web. In another note of grace, the filmmakers are donating a portion of the proceeds to a charity for children’s mental health in Britain.
The subject matter may be the journey to find Lars but that’s not really what this film is about. This is about how Tom deals with his genetic disorder and how it affects his life every day. It’s also about the love of a sister and a brother who want to make a memory for the brother whose life has been in many ways more difficult than theirs that he will always treasure. It is also about the kindness of strangers. It is an unexpectedly warm and compassionate documentary and if you’re looking for something to make you feel good, you can do no worse.
REASONS TO GO: Heartwarming and occasionally heartbreaking. Some beautiful cinematography. Admirable cause.
REASONS TO STAY: Sometimes gets repetitive. Kate’s hats.
FAMILY VALUES: Some mildly bad language.
TRIVIAL PURSUIT: The Bedfellow is an actual hotel in the Tribeca area of New York.
CRITICAL MASS: As of 9/24/15: Rotten Tomatoes: 88% positive reviews. Metacritic: 55/100.
BEYOND THEATERS: Amazon, iTunes (effective September 25)
COMPARISON SHOPPING: Gabrielle
FINAL RATING: 7/10